It has been a long afternoon. The review committee did meet at 1:30 today and although we wanted to be present, we were told it wasn’t normal protocol and we would not be allowed. A nurse came to Samuel’s room at about 1:45 to inform us that we would be able to come to the meeting at 2:15. We went, they asked questions and wanted clarification on different issues; we spent about 30 minutes voicing our opinions and then left. They continued the meeting until probably 4:00 and finally decided to leave the decision of the home vent to us and made a couple of recommendations: to have a Cardinal Glennon pediatrician assigned to Samuel who is familiar with his situation and to have clear cut directives on what happens if he needs to return. Samuel will be placed on the home vent tomorrow and we will finish the training and transition home.
Yancy
The Family
The Kids
Christmas at Grandma's
Samuel and his Buddy
Samuel's friend Lucas was able to come and join us in our Celebration of Life, a real treat for all of us! I may be partial, but these two guys are my favorite little men.
Elianna Helps With Range
Elianna helps with Samuel's daily range. She is taught to love and help brother because he is so important and special to us. She watches everything we do so that she can help.
Me and Samuel
Okay, so my favorite snuggle spot is up in bed with Samuel. Most people think I'm crazy for squeezing up on that little bed with him but we like it that way. Samuel and I are reading our favorite book Ishmael.
Samuel Helps Cook In The Kitchen
Samuel joins us in daily activities.
Samuel Swinging
Samuel's not sure yet how he feels about swinging. It is an odd sensation.
Reading
Samuel loves to be read too. We are both book worms.
Of course Elianna can't miss out. She shares her brother's love of reading and is never far behind.
Samuel and Buttons
Samuel's Easter Picture
Samuel and his Buddies
From left to right: Old Reliable, Quacker Jack, Ivan, Frogerton, Mr. Philmore Better, Woolma, and Nanook
Sheila
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Sheila has now been part of our family for seven months. She's always good for a laugh and is very devoted to Samuel and our Family. Don't mess with Sheila's little guy, you'll regret it. This is taken on Samuel's first Birthday.
Debbie
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Debbie is one of our new nurses. She has been a great blessing in her positive outlook and proactive attitude. Her desire is to help Samuel however she can in whatever way he needs.
Julie
As you can see, Samuel loves Julie's voice. He listens to her with big open eyes and hangs on every word she says. Samuel loves to be sung to, but he especially loves to hear Julie.
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