A quick update. Samuel arrived home yesterday. My parents decided there was nothing being done in the hospital that we couldn’t do at home, my Mom says we are playing hospital at home. We were originally going to have to do daily blood work, but neither Quest nor JMH would finger stick Samuel (we do not want to have his blood taken through his veins). Instead of driving up to Cardinal Glennon daily his doctors have decided we can just take his blood when he comes in for appointments. He will be heading in for an appointment on Monday and we hope to find his Potassium still doing well and some of his Adema reduced. Samuel has been responding somewhat to his new form of treatment, but we are still dealing with his fluids. We are so glad to have Samuel home!
Kaitlyn
The Family
The Kids
Christmas at Grandma's
Samuel and his Buddy
Samuel's friend Lucas was able to come and join us in our Celebration of Life, a real treat for all of us! I may be partial, but these two guys are my favorite little men.
Elianna Helps With Range
Elianna helps with Samuel's daily range. She is taught to love and help brother because he is so important and special to us. She watches everything we do so that she can help.
Me and Samuel
Okay, so my favorite snuggle spot is up in bed with Samuel. Most people think I'm crazy for squeezing up on that little bed with him but we like it that way. Samuel and I are reading our favorite book Ishmael.
Samuel Helps Cook In The Kitchen
Samuel joins us in daily activities.
Samuel Swinging
Samuel's not sure yet how he feels about swinging. It is an odd sensation.
Reading
Samuel loves to be read too. We are both book worms.
Of course Elianna can't miss out. She shares her brother's love of reading and is never far behind.
Samuel and Buttons
Samuel's Easter Picture
Samuel and his Buddies
From left to right: Old Reliable, Quacker Jack, Ivan, Frogerton, Mr. Philmore Better, Woolma, and Nanook
Sheila
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Sheila has now been part of our family for seven months. She's always good for a laugh and is very devoted to Samuel and our Family. Don't mess with Sheila's little guy, you'll regret it. This is taken on Samuel's first Birthday.
Debbie
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Debbie is one of our new nurses. She has been a great blessing in her positive outlook and proactive attitude. Her desire is to help Samuel however she can in whatever way he needs.
Julie
As you can see, Samuel loves Julie's voice. He listens to her with big open eyes and hangs on every word she says. Samuel loves to be sung to, but he especially loves to hear Julie.
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